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RARE Advocacy Summit 2023 -- Power of Partnering: Children’s Hospital Colorado
RARE Advocacy Summit 2023 -- Power of Partnering: Zander Translational Research Neuroscience Center
RARE Advocacy Summit 2023: Supporting Your Rare Community’s Mental Health
RARE Advocacy Summit 2023: Emerging Rare Policy Issues
2023 RARE Advocacy Summit: Coping with the Challenge of Rare Disease - With or Without a Diagnosis
RARE Advocacy Summit: Emerging Opportunities to Accelerate Research Through Community Collaborations
The Idiosyncrasies of Different Disease Areas, Varying Patient Needs, and Diverse Advocacy Efforts
Rare Disease Therapeutics - Soup to Nuts - Conference by Tina Urv
Examples, tips and resources for patient-led research. PxP 2023.
Rare Disease Forum - Patient and Public Involvement in Rare Disease Research- June 14th 2023
Patient partnership webinar - Patient Representatives Involvement in the ERN Evaluation
AYA-O POWER: Session 8 - Understanding and Addressing the Psychosocial Needs of AYA Patients
